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Fifty Mums Do Carpool Karaoke With Their Children Who Have Down’s Syndrome

A Coventry mum has expressed her joy after a video of her and her disabled son singing in the car went viral around the world. Becky Carless and her four-year-old, Archie, who has from Down’s Syndrome, filmed themselves performing the song ‘A Thousand Years’ by Christina Perri as part of a campaign to raise awareness of the condition for 2018 World Down’s Syndrome Day. She was not alone: 50 mums and 50 kids released their versions of the song, performed using Makaton, a form of sign language that is designedRead More

Jenks Trojan Cancer Free After Battling Stage 4 Lymphoma

JENKS, Oklahoma – Jackson Lilly was just a Jenks Trojan trying to find some playing time. This week, he’s got his moment to shine for the whole world to see after his teammates celebrated with the ringing of the bell to be cancer free. “I just thought it was something our community would see, then everybody started commenting and it started going everywhere,” said Lilly. His story was seen on Bleacher Report, network news, ESPN, you name it. Lilly’s triumph of defeating cancer is everywhere.  A tweet from strength coachRead More

Hope for first drug against lymphedema

Many cancer patients, especially those who’ve undergone breast cancer treatment, experience painful, swollen limbs, a condition called lymphedema. Now researchers say they’ve found an underlying mechanism that could eventually lead to the first drug therapy for the debilitating condition. The findings come from research in mice and human cells. However, there’s already a clinical trial underway to see whether these lab discoveries will translate into a new lymphedema treatment. It’s estimated that 10 million Americans have lymphedema, said Dr. Stanley Rockson, one of the senior researchers on the study. “Even though manyRead More

Hope for first drug against lymphedema

Bestatin is not approved in the United States, but it has been used for years in Japan as a cancer treatment. The advantage of the drug, according to Rockson, is that it has more “selective” action against LTB4 — and fewer side effects — than ketoprofen. Based on the lab findings, a clinical trial testing bestatin against lymphedema is already underway, Rockson said. Eiger BioPharmaceuticals, based in Palo Alto, Calif., is funding that trial (and acquiring the drug from its Japanese manufacturer). Rockson and a colleague on the study areRead More

Growing Push To Ban Down Syndrome Abortions Misses The Heartbreak Behind Them

Toward the end of her first trimester, Caroline — pregnant for the first time — lay on an exam table, listening with dread as a doctor listed the problems he saw on the ultrasound screen in front of him. The fetus’ bowels were on the outside of its body. It had an extremely thick nuchal fold ― a measurement of the skin at the base of the neck ― indicating chromosomal abnormalities. The doctor told Caroline, who asked to use a pseudonym for privacy reasons, that he didn’t believe the baby wouldRead More

Growing Push To Ban Down Syndrome Abortions Misses The Heartbreak Behind Them

State legislators say they simply took a stand for individuals with disabilities. But reproductive rights advocates believe the law is a bad faith effort to use Down syndrome to further stigmatize abortion and, ultimately, criminalize it. “Banning a woman from having an abortion because of a fetal diagnosis is not only unconstitutional, it also does absolutely nothing to address discrimination against people with disabilities,” said Freda Levinson, legal director for the American Civil Liberties Union of Ohio, in a press release last month. Ohio became ground zero for Down syndrome-related abortionRead More

Woman with lymphedema goes from beauty queen to hiding from the public

  ST. LOUIS – Amy Rivera suffers from a disease that affects up to 10 million Americans and many people know little about it. Today one of her legs is much larger than the other. She’s come a long way. Amy had lymphedema since birth but didn’t realize it. It never bothered her. She won Miss Junior America in 1999. Left untreated, lymphedema can kill you because your body’s lymphatic system can’t process the bacteria and it often settles in an extremity. The body’s immune system doesn’t work properly. ThereRead More

What You Should Know About the Down Syndrome Video: ’50 Mums | 50 Kids | 1 Extra Chromosome’

It all started with a group of proud parents who have been told across the media that children like theirs would be better off “screened out.”   A mum of a 4-year-old who has Down syndrome saw a “Singing Hands” carpool karaoke video signed with Makaton, a simplified form of British Sign Language, and thought how amazing it would be to replicate the idea with other mums and their young children who also have an extra chromosome. The song in question is the multiplatinum soundtrack to the “Twilight” films: “A Thousand Years,”Read More

How to know if you’re dating an empath

The opposite of a narcissist is an ’empath’ — and it could be a bad thing if you date one In relationships, there are certain qualities we all look for in a significant other. Our love stories and desires may be different, but for many people, empathy ranks high on the list of desirable traits in a partner. But what happens when someone feels empathy to the extreme? They could be an empath. According to Judith Orloff, psychiatrist and author of “The Empath’s Survival Guide,” an empath is an “emotional sponge.” “[They are]Read More

How to know if you’re dating an empath

They love spending time with you, but also need time alone. It might seem like an empath is pushing you away or distancing themselves from you, but in reality, they’re just trying to take a break from absorbing your feelings in addition to their own, which can be exhausting. Taking on the emotions of others can be draining, so empaths need to “recharge their batteries” and take a step back. That said, when they’re with you, an empath is happy to spend lots of time together, even preferring alone time over goingRead More