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Monday, January 15th, 2018

 

A Letter for Anyone Who Doesn’t Realize The Challenges of Idiopathic Hypersomnia and Narcolepsy

When you have IH/narcolepsy, your head is often a blur of thoughts and instead of mentally lining steps up in chronological order, everything just blurs together, so nothing goes as planned and you wind up being late for things regardless of how important they are to you, making time management difficult. Another issue which is probably related to both the lack of focus and lack of linear thinking is the tendency people with IH/narcolepsy have with finishing things before moving on to something else. Yep, it can be pretty normal forRead More


A Letter for Anyone Who Doesn’t Realize The Challenges of Idiopathic Hypersomnia and Narcolepsy

I wrote the following letter for members of several idiopathic hypersomnia and narcolepsy support groups on Facebook. Some people have personalized it as they see fit, and I have sent out personalized copies for a few hundred others. I don’t know the exact details of the struggles faced by people with other invisible/chronic illnesses, but I do know quite a few of them face a lot of the issues addressed in this letter, which is meant to be shown to those who don’t understand these challenges. To Whom It May Concern: I am writingRead More